She posted a photo of Evie with bandages on her foot and right arm.
Those of us who watch Sister Wives will undoubtedly be familiar with Madison Rose "Maddie" Brush (née Brown). She is the fourth child for Kody and the second for Janelle. The couple went on to have four more children after her. Maddie was raised in Utah until she was 17-years-old, at which point her family moved to Las Vegas.
Back in 2015, Maddie announced that she was engaged to Caleb Brush. He took her to a scenic lookout point on his ATV to propose.
"It was cold and we were huddled in jackets and I thought he was crazy to stop. He said to come look over here. So I walked with him to the edge. He told me he could never express how much he loved me, but he wanted to spend his life trying, and went down on one knee and pulled out a box. I started kissing him and saying, 'Yes, yes!'" - Maddie on the proposal.
Although her parents are practicing polygamists, the young couple has no plans to follow their lifestyle. Maddie and Caleb were married in Bozeman, Montana, on June 4, 2016. On May 20, 2017, Maddie gave birth to her son, Axel James. He was the first grandchild in the family.
On January 25, 2019, the couple announced that they are expecting their second baby. Evangalynn Kodi was born on August 20, 2019. On October 23, 2019, Maddie took to Instagram to share publicly about 2-month-old Evie's extremely rare medical condition.
"This is one of the hardest things that Caleb and I have gone through and the decision to share almost as difficult, but after a lot of consideration, we realized that it’s the best thing for our daughter and there is a chance it may help other parents who may also be struggling."
Our beautiful baby daughter Evie has been diagnosed with FATCO syndrome (basically the abbreviation for lots of intense Latin words😅). It’s a rare medical syndrome where bones in extremities do not fully develop.
It wasn’t a complete surprise; we were aware of some abnormalities before birth. We knew something was wrong when we went in for a routine anatomy ultrasound at 26 weeks and what should have taken 45 minutes, ended up lasting a nerve-wracking two hours. It was then that the doctor told us that they couldn’t find all ten fingers and diagnosed the baby with oligodactyly (fewer than 10 fingers). Although this was better than expected, it was still heartbreaking news.
But when Evie was born, Caleb and I found out our precious little girl was missing more than just one finger. She was missing three fingers, a toe and her fibula. She also had a bowed tibia, a shortened forearm and some fusing in her fingers. It was at this point, the doctors diagnosed her with FATCO syndrome.
We were hesitant to share Evie’s condition publicly for fear that our infant daughter would become the target of mean jokes and cyberbullying. That said, we felt not being open would be even worse and make Evie feel ashamed for something that makes her all the more special in our eyes. .. As far as we have been told, with fewer than 10 recorded cases of her specific findings, it’s unclear what causes the condition. She is healthy in every other way aside from the missing bones. As a family, we have decided to be open as we walk through this journey. We want Evie to always feel pride in who she is, and all that God gave her!
Little Evie just celebrated her first birthday and she is as adorable as ever. "Happy 1st Birthday to my little spitfire ray of sunshine," writes Maddie on Instagram. "It's crazy how quickly this year flew by. 🍋🌼💛"
Maddie later revealed that Evie had just undergone surgery. She posted a photo of Evie with bandages on her foot and right arm.
Evie received some major gifts for her 1st birthday. Her surgeon laid the groundwork for her new foot and mobility it will bring, by way of a boyd amputation. Another gave her some extra mobility in her hand, by clipping her webbing she had in her right hand.
She is home and is recovering beautifully. 💛🌼