This is a rare syndrome and it can be difficult to treat.
Madison Rose "Maddie" Brush (née Brown) is the daughter of Kody Brown and Janelle Brown. She has starred on the popular TLC drama Sister Wives since 2010.
In case you don't watch, this show chronicles the lives of a polygamist lifestyle, which was illegal in Utah at the time of the shows release. The family it follows is that of patriarch Kody Brown, his four wives, and their 18 children. The family began the series living in Lehi, Utah, but has since moved to Las Vegas, Nevada and later Baderville, Arizona. As of August 25, 2017, eleven seasons have been released with no official premiere date listed for season twelve. Madison is regularly featured on this show. She is the fourth child for Kody and the second for Janelle.
On September 13, 2015, Maddie announced that she was engaged to Caleb Brush. He took her to a scenic lookout point on his ATV to propose.
"It was cold and we were huddled in jackets and I thought he was crazy to stop. He said to come look over here. So I walked with him to the edge. He told me he could never express how much he loved me, but he wanted to spend his life trying, and went down on one knee and pulled out a box. I started kissing him and saying, 'Yes, yes!'" - Maddie on the proposal.
Although her parents are practicing polygamists, Maddie and her husband don't currently have plans to live this lifestyle themselves.
At 12:13 a.m. on May 20, 2017, Maddie gave birth to her first child, Axel James. He was the first granchild in the family.
On January 25, 2019, they couple announced that they are expecting their second baby. Their daughter, Evangalynn Kodi, was born on August 20, 2019.
On October 23, 2019, Maddie took to Instagram to share publicly about 2-month-old Evie's extremely rare medical condition.
"This is one of the hardest things that Caleb and I have gone through and the decision to share almost as difficult, but after a lot of consideration, we realized that it’s the best thing for our daughter and there is a chance it may help other parents who may also be struggling."
Our beautiful baby daughter Evie has been diagnosed with FATCO syndrome (basically the abbreviation for lots of intense Latin words😅). It’s a rare medical syndrome where bones in extremities do not fully develop.
It wasn’t a complete surprise; we were aware of some abnormalities before birth. We knew something was wrong when we went in for a routine anatomy ultrasound at 26 weeks and what should have taken 45 minutes, ended up lasting a nerve-wracking two hours. It was then that the doctor told us that they couldn’t find all ten fingers and diagnosed the baby with oligodactyly (fewer than 10 fingers). Although this was better than expected, it was still heartbreaking news.
But when Evie was born, Caleb and I found out our precious little girl was missing more than just one finger. She was missing three fingers, a toe and her fibula. She also had a bowed tibia, a shortened forearm and some fusing in her fingers. It was at this point, the doctors diagnosed her with FATCO syndrome.
We were hesitant to share Evie’s condition publicly for fear that our infant daughter would become the target of mean jokes and cyberbullying. That said, we felt not being open would be even worse and make Evie feel ashamed for something that makes her all the more special in our eyes. .. As far as we have been told, with fewer than 10 recorded cases of her specific findings, it’s unclear what causes the condition. She is healthy in every other way aside from the missing bones. As a family, we have decided to be open as we walk through this journey. We want Evie to always feel pride in who she is, and all that God gave her!
So far, the news has been met with nothing but love.
You are a warrior! Just give her endless love like you are !
Wow, you are such great parents and Evie is more than beautiful. Thanks for sharing. Greetings from Germany.
She is beautiful and perfect! I pray with you as you walk on this scary journey. Thankful that you have a loving and supportive family to walk it with you.
Evie is beautiful. She is surrounded by an amazing family who will love her beyond measure.
Best wishes for an incredibly wonderful life for her. ❤